When Lea Johnson’s son was diagnosed with Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s Disease, he knew he needed to take action. Click to hear KMZU’s Bob Allen talk with Rural Missouri A.L.S. Support Group founder and president Lea Johnson:

Lea Johnson

Due to his son’s diagnosis, Johnson started the Rural Missouri A.L.S. Support Group. According to Johnson, the Richmond area has had several deaths resulting from the disease, but they were often misdiagnosed. Johnson says A.L.S. does not have the name recognition like cancer or Parkinson’s, but it is a devastating illness that has no treatment or cure.

Leland Jones and the Country Pickin’ Opry is helping to raise funds to boost awareness of the disease with a benefit performance Saturday at 7:00 p.m. Proceeds from the show will go directly to the A.L.S. Association. For tickets, call 816-776-6007.